I do know there are a lot of I's in this blog. But usually they are pointers to something seen or heard elsewhere. Merely an introduction to another topic.
But now I need to talk about me. My two diagnoses in the 60's and 70's yielded no information about what I should do.
I've never known I was at risk. I thought I had my small defects, and that was what it was, and it was over. I forgot that I am a genetic mutant. A little odd, but that was that.
But things fall into place. I've never told a doctor I had Fong's disease, so I've always been given antibiotics for protein in my urine.
When I had surgery for the hernia, my surgeon said my connective tissue was weak.
So now I think I should get a urine test, and analysis, and look after myself in a way I haven't before.
I know who I am. But I'm not quite sure what I am.
UPDATE: I've set up a consultation with my GP for next Wednesday.